Problems Faced by Parents in Care of Children with Congenital Clubfoot

Bhaumika Sharma

Abstract


Objective: This study aims to identify physical, psychological, social and financial problems faced by parents in care of children with congenital clubfoot.

Methods: A cross-sectional study among 52 parents of congenital clubfoot child was commenced purposively who attended Hospital and Rehabilitation Center for Disabled Children (HRDC) outpatient department for treatment. The self-constructed tool with 22 item 5-point Likert scale questionnaire was used for interview. Confidentiality and privacy of the participants was maintained.  The internal consistency of the tool after pretesting was as high as 0.887. Descriptive statistics i.e. frequency, percentage, mean, standard deviation was used for data analysis. 

Results: The study revealed that most of the clubfoot children had bilateral clubfoot (55.8%).  Parents (57.7%) had “quite a bit” problem with cutting down work time, (61.5%) “very much” worried about their child’s future, (19.2%) “a little” problems with interaction with other people and (48.1%) had “quite a bit” decreasing source of income. 

Conclusion: The parents got less time for work and had decrease in income. The parents faced fewer problems in financial aspect due to free hospital services and were also worried about their children’s future. An awareness and counseling program about free health services and health condition is recommended.


Keywords


Keywords: Problems faced, Parents, Congenital Clubfoot, Children

Full Text:

PDF

References


Alam, Z., Haque, M., Bhuiyan, R., Chowdhury, S., & Huq, F. (2014). Barriers Facing by Parents During Clubfoot Treatment of Children with Clubfoot Deformity. MOJ Orthop Rheumatol, 1(2), 00008.

Coppola, G., Costantini, A., Tedone, R., Pasquale, S., Elia, L., Barbaro, M. F., & d’Addetta, I. (2012). The impact of the baby’s congenital malformation on the mother’s psychological well-being: an empirical contribution on the clubfoot. Journal of Pediatric Orthopaedics, 32(5), 521-526.

Kazibwe, H., & Struthers, P. (2009). Barriers experienced by parents of children with clubfoot deformity attending specialised clinics in Uganda. Tropical doctor, 39(1), 15-18.

Mathias, R. G., Lule, J. K., Waiswa, G., Naddumba, E. K., & Pirani, S. (2010). Incidence of clubfoot in Uganda. Canadian Journal of Public Health, 101(4), 341-344.

Mayo, E., Cuthel, A., Macharia, J., Lavy, C., & Mead, T. Creating a countrywide program model for implementation of a Ponseti method clubfoot treatment program in developing countries.

Parul, D. (2009). Pediatric nursing. New Delhi. 2nd edition. Jaypee.

Penny N, Lavy C, Mannion S, Mayo A, Morcuende J, & R., O. (2009).

Integrating early intervention for clubfoot deformity into national plans in under-resourced nations Retrieved August 16, 2016, from Global Clubfoot Initiative

Ramahenina, H., O'connor, R. J., & Chamberlain, M. A. (2016). Problems encountered by parents of infants with clubfoot treated by the Ponseti method in Madagascar: A study to inform better practice. Journal of rehabilitation medicine, 48(5), 481-483.

Van Bosse, H. J. (2011). Ponseti treatment for clubfeet: an international perspective. Current opinion in pediatrics, 23(1), 41-45.

World Report on Disability. (2011). from World Health Organization & The World Bank


Refbacks

  • There are currently no refbacks.




Creative Commons License
This work is licensed under a Creative Commons Attribution 4.0 International License.

ISSN: 2454-6623